Megan's Journey

Thanks, everyone, for all your prayers regarding Megan’s appointments yesterday.  It was a very exhausting day driving to and from Ann Arbor with 6 hours of back-to-back appointments in between, but I am thrilled to say that overall things were positive! I’ll provide a short version update (for those who don’t want to read all the technical details) and a long version update. Short version:   Megan was not a fan of anything that happened with cardiology, but thanks to the assistance of the amazing child life team, they were able to successfully get all the testing done that was required.  Her echo and EKG were both stable (which is what we want).  The test results will be forwarded to her surgeon to review, and pending her approval, the plan will be to schedule surgery for this summer.  As the day went on, Megan did calm down a bit and was more cooperative for her other appointments.  She had a renal ultrasound (owing to her duplex collecting system and his...

The time has come to pack up and prepare for another day trip to Ann Arbor for Megan’s cardiology checkup. This is an important appointment because the tests results and discussions from this visit will be used to set an official plan for her next heart surgery which will likely occur this summer. Megan’s cardiology appointments are always on Mondays because that is her doctor’s clinic day. And today, Sunday, I can feel that all too familiar sense of anxiety rising hour by hour as we begin to pack bags for the day and make our preparations for the visit. This time feels more intense than the last several visits, perhaps because I know that very soon we will have a date. A countdown to the next time I must hand my baby over for open heart surgery and brace myself for everything that comes along with it. However, I am not surprised that (as always) God was quick to remind me that I was falling into old habits and that I needed to change course when these words were sung during church ...